“Wrong will be right, when Aslan comes in sight, At the sound of his roar, sorrows will be no more, When he bares his teeth, winter meets its death, And when he shakes his mane, we shall have spring again.”
This is amazing, Jo. I find it so hard to keep my hope for eventual treatment, and it’s “only” five years for me... reading some of these messages from some of the medics and scientists who have been working and advocating so hard for us has made me cry. Here’s to a better future! ❤️
Thank you so much Jo. It’s the middle of the night and I can’t sleep. I can’t yet read all the red leaves but just knowing that they await me is real comfort and I can’t thank you enough for gathering them for us.
The very best wishes for the coming year, may Aslam be present to us all.
Thanks Jo and to everyone who contributed! An incredibly hopeful, inspiring and reassuring read as we go into 2025. Knowing that we have such bright minds and research teams on the case gives fresh hope where it is so badly needed. For me, this did also highlight the chasm between this pioneering research and the front-line real world experience of trying to access ME (and LC) support. I really hope the methods that are already known to help a subset of people see improvements and even part/fully recover can be better disseminated across the global medical community, while we await the moonshot treatments and cures. Meanwhile, I also hope our healthcare providers can find a way to be more open to practicing inquisitive, functional, low risk (e.g. already FDA approved) medicine - even modest improvements would mean a considerable boost in our quality of life. A bed bound person may be able to sit up, see family, perhaps even make it to the lounge. A house bound person may be able to sit in the garden a short while, or have friends visit. This really would make such a difference, while we keenly await the moonshot breakthroughs which will hopefully soon follow :) Thanks again to all who are working on this in small and large ways.
Thank you, Andrew. There is indeed a huge chasm and one which needs exposing. One of the many reasons I love Shaun Tan's 'The Red Tree' is that it does not deny the reality of the dark leaves: suffering, injustice, oppression, systemic neglect, no cure and insufficient scientific curiosity. The red leaves do give me real hope... but nothing changes until things change for my daughter and others with Myalgic Encephalomyelitis and Long Covid. In solidarity.
This is amazing, Jo. I find it so hard to keep my hope for eventual treatment, and it’s “only” five years for me... reading some of these messages from some of the medics and scientists who have been working and advocating so hard for us has made me cry. Here’s to a better future! ❤️
Thank you so much Jo,
I used to read Shaun Tan books to my children. May you collect many red leaves along your path. Happy New Year.
Thank you so much, really needed these glimmers of hope after a sleepless night.
Thank you so much Jo. It’s the middle of the night and I can’t sleep. I can’t yet read all the red leaves but just knowing that they await me is real comfort and I can’t thank you enough for gathering them for us.
The very best wishes for the coming year, may Aslam be present to us all.
Reading these messages made me cry! Thank you so much for sharing them!!
Thanks Jo and to everyone who contributed! An incredibly hopeful, inspiring and reassuring read as we go into 2025. Knowing that we have such bright minds and research teams on the case gives fresh hope where it is so badly needed. For me, this did also highlight the chasm between this pioneering research and the front-line real world experience of trying to access ME (and LC) support. I really hope the methods that are already known to help a subset of people see improvements and even part/fully recover can be better disseminated across the global medical community, while we await the moonshot treatments and cures. Meanwhile, I also hope our healthcare providers can find a way to be more open to practicing inquisitive, functional, low risk (e.g. already FDA approved) medicine - even modest improvements would mean a considerable boost in our quality of life. A bed bound person may be able to sit up, see family, perhaps even make it to the lounge. A house bound person may be able to sit in the garden a short while, or have friends visit. This really would make such a difference, while we keenly await the moonshot breakthroughs which will hopefully soon follow :) Thanks again to all who are working on this in small and large ways.
Thank you, Andrew. There is indeed a huge chasm and one which needs exposing. One of the many reasons I love Shaun Tan's 'The Red Tree' is that it does not deny the reality of the dark leaves: suffering, injustice, oppression, systemic neglect, no cure and insufficient scientific curiosity. The red leaves do give me real hope... but nothing changes until things change for my daughter and others with Myalgic Encephalomyelitis and Long Covid. In solidarity.
This is beautiful. Cheers to you for making this happen.
Thank you 🍁❤️
This made me tear up. Thank you so much for this, after my first Christmas and NYE with severe ME this is the ray of hope I desperately needed 🌟